So far it has been accessed by 379 children or young people and completed by 299 of these. It has reached people in 26 countries. Recently the ILF was approached by Spain to ask if the questionnaire could be translated into Spanish thus joining the other 7 languages it is already available ...

Lymphoedema is a very rare disease in children and young people. The International Lymphoedema Framework (ILF) works currently to validate a quality-of-life tool to give greater understanding of how lymphoedema affects the life of children and young people suffering from ...