Website Privacy Policy of the ILF

This statement outlines how we treat the information we collect during your visit to this website. Where you actively provide information to the ILF, this information will be used only for the service you have requested, unless you consent otherwise at the time of submitting the data. 
The ILF may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes. 

Data Protection Act 2018

The ILF complies with the Data Protection Act 2018 in the gathering, storage, use, release, and disposal of personal information. The information collected can be seen below.

What data we collect 

By registering on the ILF website either as an Affiliate or as a Conference attendee you consent to us collecting and storing the following information: 
name, job title, workplace and personal address 
contact information including email address and telephone numbers 
demographic information such as profession and areas of interest 

What we do with the information we collect 

We require this information to understand your needs and provide you with a better service, and for ILF internal record keeping.. 
We may use the information to send you promotional information if you have indicated that you would like this 
When registering for an event your information will be used by the event organisers and relevant  third parties for accessing the event. 

Withdrawing consent 

You may withdraw your consent at any time by contacting us and requesting that we delete your personal data from our systems. We will complete this request within 28 days, unless we are lawfully required to keep this information under UK / EU law or other international treaties. 

Controlling your personal information 

You may choose to restrict the collection or use of your personal information. 
Whenever you are asked to fill in a form on the website, look for the box that you can click to indicate that you do not want the information to be used by anybody for direct marketing purposes 
If you have previously agreed to us using your personal information for direct marketing purposes, you may change your mind at any time by writing to or emailing us at 
You may request details of personal information which we hold about you under the Data Protection Act. A small administration fee will be payable. If you would like a copy of the information held on you please email and we will respond to you within 21 days. 
If you believe that any information we are holding on you is incorrect or incomplete, please email us as soon as possible at the above address. We will promptly correct any information found to be incorrect 


We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online. 

Links to other websites 

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question. 

Statistical Analysis

The ILF website does not automatically capture or store personal data from visitors to the site, other than to log your IP address and session information. Session information includes the time and duration of your visit to the site, the files requested and the browser used. This information will only be used by persons authorised by the ILF and its agents. The information will be retained by the ILF and will only be used for managing the site and for statistical and audit purposes.

Browser Cookies

Cookies are small text files passed to your computer by the web server via your browser and may be used to collect information to help identify you and to prepare customised pages for you. Cookies may remain on your computer for the duration of your visit or indefinitely. You can instruct your browser to refuse cookies However, please note that if you do, you may not be able to use the full functionality of the website.
On 26 May 2011 the law on Cookies changed for any website within the EU, please refer to our policy on cookies for further information.

Web Forms

You may be asked to provide personal information to gain access to specific services. By supplying such information, you consent to the ILF storing the information for the stated purpose. The information will be held by the ILF in accordance with the provisions of the Data Protection Act 2018.


You have the right to lodge a complaint to the ILF regarding the GDPR. Please contact the Data Protection Officer at
You have the right to lodge a complaint to the Information Commissioner’s Officer if you believe the ILF has not complied with the GDPR. Contact:
Information Commissioners Office
Wycliffe House
Water Lane
Cheshire SK9 5AF

International Lymphoedema Framework
Registered Office: 7-8 , Ritz Parade, Western Avenue, London, W5 3RA

Registered in England (No 0679 2587); Registered Charity in England and Wales (No 1134989)

Office of the Secretariat: Unit G, Wixford Park, Bidford on Avon, Alcester, B50 4JS, UK. Phone: +44 1789 582000