Date: 27 May 2021

Exploring the quality of life of children and young people with lymphoedema

Lymphoedema is a very rare disease in children and young people. The International Lymphoedema Framework (ILF) works currently to validate a quality-of-life tool to give greater understanding of how lymphoedema affects the life of children and young people suffering from it.

As part of this project, the ILF invites you to take part in an international survey. The questionnaire is divided into 2 parts: One for younger children aged 5-12, and one for young people aged 13-21. It is available in English, and furthermore, it is translated into 6 languages. To complete the survey in your own language, please access via the flags below.

Further information about the study can be found once the link has been accessedThe survey takes about 15 minutes to complete and will remain online until the end of August 2021. If you have any queries, please contact the ILF Secretariat

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