About Us

The International Lymphoedema Framework

 improving the management of lymphoedema worldwide

The success of the UK Lymphoedema Framework in improving the management of this condition in Great Britain has led many international Lymphoedema experts to express an interest in the Framework Methodology and Spirit. This is why Christine Moffatt CBE and her team decided to set up the International Lymphoedema Framework (ILF) as a charity.

The choice of charitable status is a strong message to the lymphoedema community on the ethos and vision that govern the Framework. It is also a guarantee of the independance of the ILF in the ethical use of its resources and its capacity to actively contribute to the improvement of the management of lymphoedema worldwide and especially in developing countries.

Fundamentals

 
We believe that:
  • Patients should always be at the heart of the Framework Projects.
  • Only a collaborative and multidisciplinary partnership between all stakeholders, recognised as experts, can lead to an improvement in the management of lymphoedema.
  • Improving the management of lymphoedema is a dynamic process requiring ongoing research and implementation into practice.
  • International collaboration is essential.
Our Vision

We work for creating a better everyday life for people worldwide who live with lymphoedema and related disorders.

The Governing Board of Trustees is made up of opinion experts and leaders in their field, from around the world – who volunteer their time and expertise.
Find out about our current trustees in the list below.

Christine Moffatt is Clinical professor of skin integrity at Nottingham University Hospital, Nottingham, UK and visiting professor at the Copenhagen Wound Healing Centre, Bispebjerg Hospital, Copenhagen, Denmark.

Prof. Moffatt is the chair of the board of directors of the International Lymphoedema Framework (ILF). She has been involved in wound healing research and practice for 25 years and lymphoedema for 15 years. She has undertaken extensive research in this field using mixed research methods including running national and international clinical trials.

Her areas of research include compression therapy; service development and evaluation; psychosocial impact of disease; chronic wounds and lymphoedema. She has presented and published widely and internationally.

Christine Moffatt was awarded a CBE in the 2006 New Year’s Honours List and made a life fellow of the Royal College of Nursing that same year. In December 2008 she received a Nursing Times Diamond 20 Award as one of the 20 most influential nurses in the last 60 years.

Christine has received several life time achievement awards in recognition of the work of her as well as of the ILF. The most recent is the World Union of Wound Healing Societies and Journal of Wound Care Most Progressive Society Award in February 2021.

Ellen has congenital multi-segmental primary lymphoedema with systemic involvement. Growing up with her condition she felt isolated and struggled to accept her condition. After undergoing successful and intensive treatment, she felt enabled to manage her lymphoedema better and learn to finally accept her lymphoedema diagnosis.

Ellen firmly believes in the importance of supporting confidence, acceptance and self-management techniques within the lymphoedema community. She is keen to increase patient representation at all levels of policy, presenting at the British Lymphology Society Annual Conference and more recently the launch of the commissioning guidance at the UK House of Commons.

Ellen is currently studying Medicine at Cardiff University and firmly believes in effective education and awareness of lymphoedema across medical education.

Ellen joined the Board of Directors in June 2019.

Tonny Karlsmark is consultant and associated professor in Dermato-venereology working at Bispebjerg Hospital, University of Copenhagen. As former head of the department for 15 years, he has experience as well as a diploma in National Health Service Management. He has held Honorary positions such as chairman of the Danish Dermatological Society 2003-2005 and chairman of the Danish Lymphoedema Framework (DLF) from 2010.

His main research areas include wound healing and treatment of chronic oedema. In 1990 he defended

his thesis about “Electrically induced dermal changes” – a morphologic study of porcine skin after transfer of low-moderate amount of electrically energy.

He has published more than 115 articles in international journals and acts as advisor for more than 10 Ph.D. degrees and made opposition (acting as critic) for 1 doctoral thesis and 9 Ph.D. degrees.

Tonny joined the ILF Board in June 2018.

Dr. Keast, a native of London, Ontario, Canada, graduated from Western University with a Masters Degree in Chemistry and taught high school for 11 years before entering Queen’s University (Canada) to study medicine, graduating in 1985.

He is a Fellow of the College of Family Physicians of Canada. He practised Family Medicine for 25 years before focusing his practice on chronic wound and lymphoedema management. He is currently the Medical Director of the Outpatient Chronic Wound Management Clinic at the Parkwood Institute, London. Dr. Keast is Clinical Adjunct Professor of Family Medicine, Schulich School of Medicine and Dentistry and Associate Scientist in the Parkwood Research Institute, part of the Lawson Health Research Institute.

He has research interest s in wound assessment tools, and the nature and characteristics of people living with lymphoedema. He has participated in multiple clinical trials. Dr. Keast is a founding board member and Past President of the Canadian Association of Wound Care (now Wounds Canada), the founding co-chair of the Canadian Lymphedema Framework and one of the founding members of the World Alliance for Wound and Lymphedema Care in cooperation with the World Health Organization. Dr. Keast is an internationally recognized educator and has published over 90 papers and eight book chapters.

Susie has been associated with the ILF since its conception. Her background is as a nurse and midwife and she spent the last 25 years of her career as a Health Visitor working with families with small children to encourage the parents in their own and their family’s physical, mental and emotional health and wellbeing.

 When Susie ‘retired’ she was approached by the ILF to undertake interviews with children who had lymphoedema (and their parents) inorder for the ILF to develop an understanding of what it was like for the child who had lymphoedema and their family to live with this condition. The study sought to know how the family managed on a daily basis, their experiences of the services provided in the UK, and what they thought could happen to improve the life of their child. Even more importantly the project objectives were to find out from the child their experiences and ways of dealing with a condition that would be long-term.

Following this study and since getting ‘hooked’ on lymphoedema, Susie has spent the last few years working as a Clinical Trial Monitor in a range of lymphoedema studies for the ILF. She is presently co-ordinating the ILF international prevalence study – LIMPRINT.

Susie is committed to the ILF in the coming years to enable it to better carry out the task it has set for itself and ensure that the best management of lymphoedema and chronic oedema will develop worldwide.

Susan is a specialist nurse in wound healing and lymphoedema working at Bispebjerg University Hospital in Copenhagen. She graduated from Sankt Lukas Stiftelsens Nursing School in Hellerup in 1988. Together with Professor Finn Gottrup and other collaborators, she established the Copenhagen Wound Healing Center in 1996 working as staff nurse in the outpatient clinic, with clinical responsibility for the development of clinical guidelines for the treatment of venous leg ulcers.

Susan has 25 years of experience in treating chronic oedema and in 2006, she established the first multidisciplinary lymphoedema clinic in Denmark, at the Copenhagen Wound Healing Center together with Dr. Tonny Karlsmark and Dr. Bo Jørgensen.

Together with Dr. Tonny Karlsmark she established the Danish Lymphoedema Framework in 2010 and she has been an ILF board member since 2011.

Susan has been a teacher at postgraduate education for healthcare professionals in Copenhagen and has developed teaching programmes for nurses treating patients with compression therapy. She has coordinated several international research projects and has been author and co-author on scientific articles.

Martina is a doctoral researcher at the School of Health Sciences, University of Nottingham, UK. Prior to starting her PhD she worked as a research associate on a Knowledge Transfer Partnership project that looked into current issues in wound care within Nottinghamshire, UK. Between 2014 and 2017 she was involved in the LIMPRINT study led by Professor Christine Moffatt that aimed to estimate the impact and prevalence of chronic oedema worldwide. When working on this project Martina developed her passion for researching lymphoedema which led to her decision to pursue a PhD in this field. Prior to starting her PhD she studied public health, and business and management. Her PhD aims to identify enablers and barriers to a successful chronic oedema & wet legs care pathway implementation in the community.

Martina has worked on several Limprint and other health-related research projects as a part-time researcher in the UK and Denmark.

Martina joined the ILF Board (Young Researcher Member) in June 2019.

Melanie is a Chartered Physiotherapist and is the National Clinical Lead for Lymphoedema Services in Wales, UK. She was instrumental in developing equitable lymphoedema services in Wales and now manages the award winning Lymphoedema Network Wales.

Her interest in lymphoedema began in 1997 whilst working in a local hospice. In 2001, she set up the first lymphoedema service in South West Wales. Melanie qualified as a lymphoedema teacher in 2005 as part of the Macmillan Lymphoedema Education Programme and leads on the education programme in Wales, delivering MLD and lymphoedema advanced update courses.

Melanie has been the principal investigator in numerous research trials in lymphoedema. She has just submitted her Doctorate with Swansea University on the lymphoedema risk reducing recommendations for people treated for breast cancer. She has presented and published widely in delivering innovations in lymphoedema care.

Melanie is currently the Programme Manager for the delivery of the Lymphatic Venous Anastomosis super microsurgery development and the national Paediatric Services in Wales.

In 2012, Melanie became the first Macmillan Cancer Fellow. In 2013 was awarded a MBE in the Queen’s Birthday Honours. In 2014, she was presented with a Distinguished Service Award by the Chartered Society of Physiotherapy and in 2015 was awarded a Fellowship by the Chartered Society of Physiotherapy.

Isabelle is a physician, Professor of Vascular Medicine at the University of Montpellier in France where she is Head of the Vascular and Lymphology Medicine Department.

Her main research areas include venous thromboembolism (VTE) disease, lymphatic and venous post-thrombotic syndrome (PTS), and rare vascular diseases. She has published internationally. She also teaches in a range of other subjects at the University.

Isabelle has experience working closely with International Societies and Charities, some of which she has been a Chair or a an active member of.

Since 2011 Isabelle has been the Head of the French Lymphoedema Framework, Partenariat Français du Lymphoedème –(PFL). She was the organiser and President of the last ILF Conference held in Montpellier in 2012 where she also ran a one week camp for nine children and young adults with lymphoedema, from four different countries.

Honorary Trustee, Hiromi Sanada, is a professor at the Department of Gerontological Nursing/Wound Care Management, Division of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, Japan.

Hiromi is also a president of three academic societies of wound care, Japanese Society of Pressure Ulcers, and Japanese Society of Wound, Ostomy, and Continence Management, and The Society for Nursing Science and Engineering. Furthermore, she is a vice-president of Japanese Nursing Association from 2011, which is the largest professional organization for nurses consisting of approximately 650,000 nurses.

She is an editor of International Wound Journal and an editorial advisor of Journal of Wound Care. She graduated from St. Luke’s College of Nursing in 1979, and received the Enterostomal therapist certification from St. Luke’s International Hospital, E. T. School in 1987. She received her PhD from Kanazawa University in 1997. After working as a professor at Kanazawa University from 1998, she moved to The University of Tokyo as a professor of Gerontological Nursing and Wound Care Management Department.

Hiromi has published and edited many scientific articles and text books which are now being used as a gateway for researchers and clinicians in the wound care management.

In respect of her many contributions to the work of the ILF, in 2015 Hiromi Sanada was granted the prestigious position as Honorary Trustee of the International Lymphoedema Framework.

Honorary Trustee, Peter Franks, is a medical scientist with interests in the epidemiology and health economics of wounds and lymphoedema. He has been researching wound care for over 30 years with his main collaborator Professor Christine Moffatt.

Together, they established the Centre for Research & Implementation of Clinical Practice (CRICP), a charity established in 1994, to develop and evaluate models of care to overcome the specific needs of health organisations and patients. The Centre has established links with academic and clinical groups in Portugal, Czech Republic, Slovenia, Poland, USA, Japan and Canada. He was president of the European Wound Management Association 2005-2007, having served on the board of directors of EWMA for ten years.

In April 2001 Peter received a full personal chair in Health Sciences at Thames Valley University (now the University of West London), UK. His current position is as the director of CRICP.

Peter has been a co-author on the number of research projects related to epidemiology and service development in both leg ulceration and lymphoedema. He is a partner in an Erasmus project (PoLyEurope – Postgraduate Lymphology Training in Europe) funded by the EU to develop a pan European graduate course in lymphoedema to medical practitioners.

Peter was granted the position as Honorary Trustee of the International Lymphoedema Framework in June 2018 after several years serving the Board as a Director.

Christine Moffatt is Clinical professor of skin integrity at Nottingham University Hospital, Nottingham, UK and visiting professor at the Copenhagen Wound Healing Centre, Bispebjerg Hospital, Copenhagen, Denmark.

Prof. Moffatt is the chair of the board of directors of the International Lymphoedema Framework (ILF). She has been involved in wound healing research and practice for 25 years and lymphoedema for 15 years. She has undertaken extensive research in this field using mixed research methods including running national and international clinical trials.

Her areas of research include compression therapy; service development and evaluation; psychosocial impact of disease; chronic wounds and lymphoedema. She has presented and published widely and internationally.

Christine Moffatt was awarded a CBE in the 2006 New Year’s Honours List and made a life fellow of the Royal College of Nursing that same year. In December 2008 she received a Nursing Times Diamond 20 Award as one of the 20 most influential nurses in the last 60 years.

Christine has received several life time achievement awards in recognition of the work of her as well as of the ILF. The most recent is the World Union of Wound Healing Societies and Journal of Wound Care Most Progressive Society Award in February 2021.

Ellen has congenital multi-segmental primary lymphoedema with systemic involvement. Growing up with her condition she felt isolated and struggled to accept her condition. After undergoing successful and intensive treatment, she felt enabled to manage her lymphoedema better and learn to finally accept her lymphoedema diagnosis.

Ellen firmly believes in the importance of supporting confidence, acceptance and self-management techniques within the lymphoedema community. She is keen to increase patient representation at all levels of policy, presenting at the British Lymphology Society Annual Conference and more recently the launch of the commissioning guidance at the UK House of Commons.

Ellen is currently studying Medicine at Cardiff University and firmly believes in effective education and awareness of lymphoedema across medical education.

Ellen joined the Board of Directors in June 2019.

Tonny Karlsmark is consultant and associated professor in Dermato-venereology working at Bispebjerg Hospital, University of Copenhagen. As former head of the department for 15 years, he has experience as well as a diploma in National Health Service Management. He has held Honorary positions such as chairman of the Danish Dermatological Society 2003-2005 and chairman of the Danish Lymphoedema Framework (DLF) from 2010.

His main research areas include wound healing and treatment of chronic oedema. In 1990 he defended

his thesis about “Electrically induced dermal changes” – a morphologic study of porcine skin after transfer of low-moderate amount of electrically energy.

He has published more than 115 articles in international journals and acts as advisor for more than 10 Ph.D. degrees and made opposition (acting as critic) for 1 doctoral thesis and 9 Ph.D. degrees.

Tonny joined the ILF Board in June 2018.

Dr. Keast, a native of London, Ontario, Canada, graduated from Western University with a Masters Degree in Chemistry and taught high school for 11 years before entering Queen’s University (Canada) to study medicine, graduating in 1985.

He is a Fellow of the College of Family Physicians of Canada. He practised Family Medicine for 25 years before focusing his practice on chronic wound and lymphoedema management. He is currently the Medical Director of the Outpatient Chronic Wound Management Clinic at the Parkwood Institute, London. Dr. Keast is Clinical Adjunct Professor of Family Medicine, Schulich School of Medicine and Dentistry and Associate Scientist in the Parkwood Research Institute, part of the Lawson Health Research Institute.

He has research interest s in wound assessment tools, and the nature and characteristics of people living with lymphoedema. He has participated in multiple clinical trials. Dr. Keast is a founding board member and Past President of the Canadian Association of Wound Care (now Wounds Canada), the founding co-chair of the Canadian Lymphedema Framework and one of the founding members of the World Alliance for Wound and Lymphedema Care in cooperation with the World Health Organization. Dr. Keast is an internationally recognized educator and has published over 90 papers and eight book chapters.

Susie has been associated with the ILF since its conception. Her background is as a nurse and midwife and she spent the last 25 years of her career as a Health Visitor working with families with small children to encourage the parents in their own and their family’s physical, mental and emotional health and wellbeing.

 When Susie ‘retired’ she was approached by the ILF to undertake interviews with children who had lymphoedema (and their parents) inorder for the ILF to develop an understanding of what it was like for the child who had lymphoedema and their family to live with this condition. The study sought to know how the family managed on a daily basis, their experiences of the services provided in the UK, and what they thought could happen to improve the life of their child. Even more importantly the project objectives were to find out from the child their experiences and ways of dealing with a condition that would be long-term.

Following this study and since getting ‘hooked’ on lymphoedema, Susie has spent the last few years working as a Clinical Trial Monitor in a range of lymphoedema studies for the ILF. She is presently co-ordinating the ILF international prevalence study – LIMPRINT.

Susie is committed to the ILF in the coming years to enable it to better carry out the task it has set for itself and ensure that the best management of lymphoedema and chronic oedema will develop worldwide.

Susan is a specialist nurse in wound healing and lymphoedema working at Bispebjerg University Hospital in Copenhagen. She graduated from Sankt Lukas Stiftelsens Nursing School in Hellerup in 1988. Together with Professor Finn Gottrup and other collaborators, she established the Copenhagen Wound Healing Center in 1996 working as staff nurse in the outpatient clinic, with clinical responsibility for the development of clinical guidelines for the treatment of venous leg ulcers.

Susan has 25 years of experience in treating chronic oedema and in 2006, she established the first multidisciplinary lymphoedema clinic in Denmark, at the Copenhagen Wound Healing Center together with Dr. Tonny Karlsmark and Dr. Bo Jørgensen.

Together with Dr. Tonny Karlsmark she established the Danish Lymphoedema Framework in 2010 and she has been an ILF board member since 2011.

Susan has been a teacher at postgraduate education for healthcare professionals in Copenhagen and has developed teaching programmes for nurses treating patients with compression therapy. She has coordinated several international research projects and has been author and co-author on scientific articles.

Martina is a doctoral researcher at the School of Health Sciences, University of Nottingham, UK. Prior to starting her PhD she worked as a research associate on a Knowledge Transfer Partnership project that looked into current issues in wound care within Nottinghamshire, UK. Between 2014 and 2017 she was involved in the LIMPRINT study led by Professor Christine Moffatt that aimed to estimate the impact and prevalence of chronic oedema worldwide. When working on this project Martina developed her passion for researching lymphoedema which led to her decision to pursue a PhD in this field. Prior to starting her PhD she studied public health, and business and management. Her PhD aims to identify enablers and barriers to a successful chronic oedema & wet legs care pathway implementation in the community.

Martina has worked on several Limprint and other health-related research projects as a part-time researcher in the UK and Denmark.

Martina joined the ILF Board (Young Researcher Member) in June 2019.

Melanie is a Chartered Physiotherapist and is the National Clinical Lead for Lymphoedema Services in Wales, UK. She was instrumental in developing equitable lymphoedema services in Wales and now manages the award winning Lymphoedema Network Wales.

Her interest in lymphoedema began in 1997 whilst working in a local hospice. In 2001, she set up the first lymphoedema service in South West Wales. Melanie qualified as a lymphoedema teacher in 2005 as part of the Macmillan Lymphoedema Education Programme and leads on the education programme in Wales, delivering MLD and lymphoedema advanced update courses.

Melanie has been the principal investigator in numerous research trials in lymphoedema. She has just submitted her Doctorate with Swansea University on the lymphoedema risk reducing recommendations for people treated for breast cancer. She has presented and published widely in delivering innovations in lymphoedema care.

Melanie is currently the Programme Manager for the delivery of the Lymphatic Venous Anastomosis super microsurgery development and the national Paediatric Services in Wales.

In 2012, Melanie became the first Macmillan Cancer Fellow. In 2013 was awarded a MBE in the Queen’s Birthday Honours. In 2014, she was presented with a Distinguished Service Award by the Chartered Society of Physiotherapy and in 2015 was awarded a Fellowship by the Chartered Society of Physiotherapy.

Isabelle is a physician, Professor of Vascular Medicine at the University of Montpellier in France where she is Head of the Vascular and Lymphology Medicine Department.

Her main research areas include venous thromboembolism (VTE) disease, lymphatic and venous post-thrombotic syndrome (PTS), and rare vascular diseases. She has published internationally. She also teaches in a range of other subjects at the University.

Isabelle has experience working closely with International Societies and Charities, some of which she has been a Chair or a an active member of.

Since 2011 Isabelle has been the Head of the French Lymphoedema Framework, Partenariat Français du Lymphoedème –(PFL). She was the organiser and President of the last ILF Conference held in Montpellier in 2012 where she also ran a one week camp for nine children and young adults with lymphoedema, from four different countries.

Honorary Trustee, Hiromi Sanada, is a professor at the Department of Gerontological Nursing/Wound Care Management, Division of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, Japan.

Hiromi is also a president of three academic societies of wound care, Japanese Society of Pressure Ulcers, and Japanese Society of Wound, Ostomy, and Continence Management, and The Society for Nursing Science and Engineering. Furthermore, she is a vice-president of Japanese Nursing Association from 2011, which is the largest professional organization for nurses consisting of approximately 650,000 nurses.

She is an editor of International Wound Journal and an editorial advisor of Journal of Wound Care. She graduated from St. Luke’s College of Nursing in 1979, and received the Enterostomal therapist certification from St. Luke’s International Hospital, E. T. School in 1987. She received her PhD from Kanazawa University in 1997. After working as a professor at Kanazawa University from 1998, she moved to The University of Tokyo as a professor of Gerontological Nursing and Wound Care Management Department.

Hiromi has published and edited many scientific articles and text books which are now being used as a gateway for researchers and clinicians in the wound care management.

In respect of her many contributions to the work of the ILF, in 2015 Hiromi Sanada was granted the prestigious position as Honorary Trustee of the International Lymphoedema Framework.

Honorary Trustee, Peter Franks, is a medical scientist with interests in the epidemiology and health economics of wounds and lymphoedema. He has been researching wound care for over 30 years with his main collaborator Professor Christine Moffatt.

Together, they established the Centre for Research & Implementation of Clinical Practice (CRICP), a charity established in 1994, to develop and evaluate models of care to overcome the specific needs of health organisations and patients. The Centre has established links with academic and clinical groups in Portugal, Czech Republic, Slovenia, Poland, USA, Japan and Canada. He was president of the European Wound Management Association 2005-2007, having served on the board of directors of EWMA for ten years.

In April 2001 Peter received a full personal chair in Health Sciences at Thames Valley University (now the University of West London), UK. His current position is as the director of CRICP.

Peter has been a co-author on the number of research projects related to epidemiology and service development in both leg ulceration and lymphoedema. He is a partner in an Erasmus project (PoLyEurope – Postgraduate Lymphology Training in Europe) funded by the EU to develop a pan European graduate course in lymphoedema to medical practitioners.

Peter was granted the position as Honorary Trustee of the International Lymphoedema Framework in June 2018 after several years serving the Board as a Director.

Our Mission

We work in partnership with the National Lymphoedema Frameworks to improve the lives of people living with lymphoedema and related disorders.

Our Beliefs

  • We value the knowledge and experience of people living with lymphoedema
  • Compassion
  • Care
  • We are passionate about changing the life’s of people living with lymphoedema
  • Drive / Dynamic
  • Power: We are stronger together than separate
  • Inspiration
  • Courage
  • Value-based.

Our Goals

  • Disseminate this knowledge by implementing an international, not-for-profit publications strategy
  • Facilitate and/or contribute to better access to treatment for patients worldwide
  • Help the health care industry understand the real needs of patients and practitioners, and develop and evaluate diagnostic tools and treatments
  • Increase awareness by raising the profile of lymphoedema
  • Increase knowledge about lymphoedema by initiating and/or contributing to research programmes
  • Increase understanding of lymphoedema and its management by creating and/or contributing to the development of education programmes
  • Provide a cross cultural networking platform through an annual international event where all stakeholders will have the opportunity to contribute and influence the ILF agenda
  • Promote and document best practice with the development of an international minimum dataset
  • Promote and facilitate international collaboration
  • Promote and support initiatives whose goals are to improve the national/regional/local management of lymphoedema anywhere in the world.
International Lymphoedema Framework Registered Office: 7-8 , Ritz Parade, Western Avenue, London, W5 3RA
Registered in England (No 0679 2587); Registered Charity in England and Wales (No 1134989)
Office of the Secretariat: Nordre Fasanvej 113, 2000 Frederiksberg C, Denmark; Phone: +45 7020 0305