LYMPHO NEWS
Dear friends,
February can be such a drab and cold month in so many areas of the world, but here in the ILF life is buzzing.
Today we have had the second meeting of the Framework Board (in two sessions because of international time differences). It was lovely to welcome our newest framework, Portugal, and we are delighted that they are now part of the ILF family. It was good not only to hear of the many opportunities being created in the name of lymphoedema to prioritise it on the healthcare agenda, but also to see countries working collaboratively and sharing their findings and expertise to address this important issue. After all, international cooperation and knowledge-sharing are key to making meaningful differences in health care. The ILF is a real family.
On another note, 3M, a major sponsor of the ILF, is starting some research into breast cancer-related lymphoedema and is asking if any countries have a registry of breast-related lymphoedema. If you do, please could you let Monica Wheeler know (mawheeler@3M.com).
With best wishes from
Christine Moffatt CBE and the ILF Board of Directors
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ILF conference 2023
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Were you able to attend? If not, you can catch up on the main stage presentations online —ticket price now REDUCED by 50%. For more information, please visit: www.lympho.org/virtual-conference
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Updates
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Coordinated project brings hope to patients in India
With India accounting for over one-third of global cases of lymphatic filariasis, the free treatment project developed by the Institute of Applied Dermatology (IAD) and funded by the Bill and Melinda Gates Foundation (BMGF) has come a long way in treating thousands of patients by opening treatment centres in Lucknow and Varanasi in Uttar Pradesh, and Begusarai and Patna in Bihar. Talks are also underway with the Chhattisgarh Government to open treatment centres in that province.
While biomedicine has no definitive cure for lymphoedema associated with lymphatic filariasis, integrative medicine developed by the IAD, combining yoga, ayurveda, and modern medicine, is successfully treating patients and alleviating their sufferings. This non-surgical approach has helped over 6,000 patients by providing significant relief in chronic cases and enabling many to return to work and lead productive lives again. The project stands out as a beacon of hope for thousands of neglected patients. Recently, the British Journal of Dermatology published a cover story about this treatment (www.youtube.com/watch?v=O3qNc-DRy2U).
Dr Narahari, director for resource-poor countries, ILF
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Awareness camps |
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Patient screening camps |
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New framework for Qatar
The Qatar Lymphedema Framework (QLF) is a comprehensive national initiative dedicated to providing support for individuals dealing with lymphoedema, lipoedema, and vascular insufficiency, both cancer and non-cancer related. This project brings together various stakeholders, fostering collaboration among healthcare providers, non-profit charity organisations, industry partners, and patient advocacy groups. The collective aim is to create a collaborative network that facilitates optimal support for patients dealing with these challenging health conditions. Through these partnerships, the QLF seeks to improve the overall well-being of individuals affected by these diseases and ensure that they receive necessary care and resources. |
Canadian Lymphedema Framework celebrates World Lymphoedema Day
Each year as part of its observation of World Lymphoedema Day, the Canadian Lymphedema Framework shares complimentary digital access to the spring issue of its lymphoedema magazine, Pathways.
The Canadian Lymphedema Framework welcomes readers from around the globe and invites ILF members and other national Frameworks to read and share.
Reserve your copy today at: www.tinyURL.com/CLF-WLD-Gift and we will notify you by email with a reading link when the issue is released on 1 March.
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47 th Congress of European Society of Lymphology (ESL)
The 47th Congress of European Society of Lymphology (ESL) will be held between 30 May and 1 June 2024 in Istanbul, Turkey. The overall theme for the conference is ‘Connecting the Continents with Present and Future Strategies for Lymphedema and Related Disorders’ (www.esl2024.org/).
The Congress will consist of keynote lectures, panels, educational workshops, interactive sessions, poster-oral presentations and meet-the-expert sessions of interest for professionals, clinicians and scientists.
So, why not mark your calendars for 30 May–1 June-2024 ESL in Istanbul…
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To hear more about what our international frameworks are doing worldwide, just click here
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Learn More
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Sign up to become an ILF Affiliate — it’s completely free and will ensure you stay informed about the goals and activities of the ILF and the work of our national frameworks around the world. ILF Affiliates benefit from:
- Reduced fees at future conferences
- Regular updates on activities and resources
- Opportunities to network with national lymphoedema frameworks
- Opportunities to influence future activities and direction.
Sign up now: https://www.lympho.org/become-an-affiliate/
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Industry support
The work of the ILF would not be possible without industry support. We thank the ILF Industry Partners for their continued engagement and support.
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Learn more
Sign up to become an ILF Affiliate — it’s completely free and will ensure you stay informed about the goals and activities of the ILF and the work of our national frameworks around the world. ILF Affiliates benefit from:
· Reduced fees at future conferences
· Regular updates on activities and resources
· Opportunities to network with national lymphoedema frameworks
· Opportunities to influence future activities and direction.
Sign up now
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