LYMPHO NEWS
Dear friends,
December 2023 is already upon us and the year seems to have flown by, unless that’s just me getting older. It has been a good and busy year for the ILF as we welcomed on board our new secretariat. Their work over the year has been of great benefit in helping us continue to work with so many lymphoedema organisations throughout the world, in helping us staying in contact with our industry partners, and in the organisation of our very successful conference in Nottingham, UK in June this year.
The theme of the conference was ‘Stronger Together’ and that has always been and remains what the ILF stands for. We are working on behalf of patients, professionals, and members of industry to ensure that treatments are appropriate, effective, and research-based.
As an organisation, we have grown as more countries have requested to become part of our family. We welcome them on board and look forward to working alongside them in the coming years. They will be an active part of the management of the ILF, as participants from each country will form a Framework Board which will meet online two to three times a year. We feel that this will help all of us not only understand our own country's issues, but also those of other countries and their successes and difficulties.
May we wish you all a joyful, peaceful, and safe time over the Christmas period, and look forward to your continuing interest in the upcoming year.
With best wishes from
Christine Moffatt CBE and the ILF Board of Directors
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ILF 2023 Conference, Nottingham
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Were you able to attend? If not, you can catch up on the main stage presentations online - ticket price now REDUCED by 50%.
For more information, please visit: ILF Virtual Conference
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CMS final rule on lymphedema compression supplies
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On 13 November, the Centers for Medicare and Medicaid Services (CMS) issued their final rule surrounding implementation of the Lymphedema Treatment Act in the USA. Additionally, CMS now has an informative Lymphedema Compression Treatment Items page on their website.
The final rule is a huge victory for patients and, in an effort to make sure that providers and patients are aware of these upcoming changes to coverage, the Lymphoedema Advocacy Group hope that organisations will disseminate this information to members.
Understanding the burden of lymphoedema in Uganda
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The Uganda Framework has embarked on a journey to comprehend the burden and context of lymphoedema within Ugandan communities. Two districts, Buvuma and Napak, have been strategically chosen to delve into the complexities of lymphoedema, based on their high malaria burden. Preliminary findings indicate that hydrocele is the most prevalent form of lymphoedema on the Buvuma Islands, with a few cases identified as lymphatic filariasis (LF) and podoconiosis. In Napak district, LF emerges as the dominant form. Throughout both districts, health system challenges persist.
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From left to right: Josephine Kyaligonza, research assistant; Dr Arthur, team leader; Fiona Kago Sekidde, research assistant; Gabriel Okello, research assistant; Brian Odoch, IT expert; Ambrose Aleper, research assistant
The Uganda Framework remains committed to fostering awareness, understanding, and action in addressing the multifaceted challenges posed by lymphoedema and looks forward to sharing more insights and collaborating with members and partners to make a meaningful impact.
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Canadian Lymphoedema Framework
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On 2–3 November in Toronto, Canada, the Canadian Lymphedema Framework welcomed more than 300 attendees to its 2023 National Lymphedema Conference, including patients, caregivers, therapists, nurses, physicians, surgeons, researchers, compression fitters, and exhibitors.
You can read a review of the conference in the latest issue of Pathways magazine, CLICK HERE.
Find links to the programme, abstracts booklet, and digital access to selected poster abstracts at THIS LINK.
The CLF will hold its next conference in 2025 and warmly welcomes delegates from international frameworks.
Join our mailing list to receive news and updates from us.
SUBSCRIBE HERE.
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To hear more about what our international frameworks are doing worldwide, just click here
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Industry support
The work of the ILF would not be possible without industry support. We thank the ILF Industry Partners for their continued engagement and support.
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Learn more
Sign up to become an ILF Affiliate — it’s completely free and will ensure you stay informed about the goals and activities of the ILF and the work of our national frameworks around the world. ILF Affiliates benefit from:
· Reduced fees at future conferences
· Regular updates on activities and resources
· Opportunities to network with national lymphoedema frameworks
· Opportunities to influence future activities and direction.
Sign up now
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