How Does Chronic Edema Impact Health-Related Quality of Life?
Final results of ILF’s large, international LIMPRINT study have provided new data on the prevalence of chronic swelling and the devastating impact it can have on health-related quality of life. A broad range of articles that give a comprehensive view of the conceptual design, implementation, results, and interpretation of the LIMPRINT findings are published in a special issue of Lymphatic Research and Biology, a peer-reviewed online journal from Mary Ann Liebert, Inc., publishers. Click here to read the open access special issue on the Lymphatic Research and Biology website.
Chronic edema caused by the relative failure of the lymphatic system is mistakenly thought of as a rare condition, when, in fact, it is not only a relatively common, universal medical problem, but also very difficult to treat. Insufficient data have not been available to estimate the size of the affected population and, thus, to support the extensive impact of this disease. In response to this need, the ILF coordinated and completed the Lymphedema Impact and Prevalence project (LIMPRINT) on a worldwide scale.
In this special issue of Lymphatic Research and Biology, Christine Moffatt, PhD, MA, RGN, CBE, School of Social Sciences, Nottingham Trent University (Nottingham, U.K.) and colleagues from Royal Derby Hospital (Derby, U.K.) and Université de Montpellier (Montpellier, France) co-authored the article entitled “The Concept of Chronic Edema—A Neglected Public Health Issue and an International Response: The LIMPRINT Study.” The authors describe LIMPRINT, the difference between lymphedema and chronic edema and how the definitions of these conditions are changing, and they explore the complex patient profiles and new understanding of the underlying physiology. They also provide an overview and comparison of recent epidemiology studies.
Also featured is the article “LIMPRINT: Health-Related Quality of Life in Adult Patients with Chronic Edema,” by Gregoire Mercier, MD, PhD, MSc, CHU de Montpellier and CNRS Université de Montpellier (Montpellier, France) and a team of researchers from Nottingham Trent University (Nottingham, U.K.) and Centre for Research & Implementation of Clinical Practice (London, U.K.). Chronic edema had a considerable impact on patient self-reports of health-related quality of life, and the impact was greater with leg compared to arm chronic edema.
“The work of the International Lymphoedema Framework is laudable and invaluable,” says Stanley G. Rockson, Editor-In-Chief. “With the availability of this incisive data set, one can envision a paradigm shift in which the international health care approach to chronic edema and lymphedema will arrive at more equitable solutions for this large segment of the nonhealthy population. It is a distinct honor for this journal to convey the results of LIMPRINT to the scientific medical literature.”