Genital oedema is a complicated condition that can cause physical, psychological and social impact. From prior research, we know that lymphoedema professionals do not fully appreciate the impact of the condition and have unmet educational requirements. This ILF education project is aiming to further understand the educational needs and tools that we should be developing, from both patients’ and professionals’ perspectives.
The Lymphoedema Network Wales Framework, one of the 15 national frameworks of the ILF, has recently completed a large survey with 688 participants from 31 countries about the education needs of health professionals managing patients with genital lymphoedema. The study was supported financially by the Tenovus Cancer Care foundation (https://www.tenovuscancercare.org.uk/).
The study showed a huge need for stronger focus on the identification and treatment of genital oedema, improved training and education of the managing specialists and development of new or better suited products targeting patients who live with genital oedema.
Based on the study, the Lymphoedema Network Wales Framework and the ILF have together agreed to initiate a new, joint initiative that will eventually lead to the development and publication of a Genital Oedema position document on genital lymphoedema in approx. 2-3 years’ time. The elaboration and publication of the Genital Oedema Position Document will be considered a Phase 2 of this project and be subject to a separate fee.
The first phase of the project will include the following elements:
A number of educational videos have been created. More details here.
THIS PROJECT IS SUPPORTED BY
The Genital Oedema Project is a partnership between:
Lymphoedema Network Wales and International Lymphoedema Framework
The project in funded by charity Tenovus Cancer Care.