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Exploring the quality of life of children and young people with lymphoedema

Lymphoedema is a very rare disease in children and young people. The International Lymphoedema Framework (ILF) works currently to validate a quality-of-life tool to give greater understanding of how lymphoedema affects the life of children and young people suffering from it.

As part of this project, the ILF invites you to take part in an international survey. The questionnaire is divided into 2 parts: One for younger children aged 5-12, and one for young people aged 13-21. It is available in English, and furthermore, it is translated into 6 languages:

English         www.surveymonkey.co.uk/r/LYMPHOQOL

Danish          www.surveymonkey.co.uk/r/LYMPHOQOL?lang=da

Dutch            www.surveymonkey.com/r/RT2DPQT?lang=nl

French          www.surveymonkey.co.uk/r/LYMPHOQOL?lang=fr

German        www.surveymonkey.co.uk/r/LYMPHOQOL?lang=de

Italian            www.surveymonkey.co.uk/r/LYMPHOQOL?lang=it

Turkish          www.surveymonkey.com/r/RT2DPQT?lang=tr

Further information about the study can be found once the link has been accessed. The survey takes about 15 minutes to complete and will remain online until the end of August 2021. If you have any queries, please contact the ILF Secretariat info@lympho.org

The International Lymphoedema Framework (ILF) is an international not-for-profit organisation registered as a charity in the UK, and working through independent national frameworks in 15 countries worldwide.

The ILF works to improve the management of lymphoedema and related disorders, always striving to engage with patients to ensure that the treatment they receive is based on sound scientific research.

The activities of the ILF include international scientific research with published results, which are disseminated through international conferences, webinars, and other education activities accessible for health care professionals, patients and other stakeholders.

Read more at www.lympho.org