Lymphoedema is a very rare disease in children and young people that can make the young person feel that they are ‘alone in the world’. The ILF is wanting to validate a Quality of Life tool to give greater understanding of how this condition affects the life of the person who has it. If you have a child aged 6-12 years or a young person aged 13-21 years who has lymphoedema their help in this would be very valuable. Please encourage them to answer the questionnaires at the link below. The questionnaire takes about 30 minutes to answer. Information about it can be found once the link has been accessed.