A dedicated platform for the lymphoedema community

Our Team

The Governing Board of Trustees is made up of opinion experts and leaders in their field, from around the world – who volunteer their time and expertise.

Professor Neil B Piller

Professor Neil B Piller BSc (hons), PhD, FACP

Neil is a Lymphologist and the Director of the Lymphoedema Clinical Research Unit in the Department of Surgery, School of Medicine at Flinders University, South Australia. He is Advanced Studies Coordinator in the MD program.

Neil is Joint Chairperson and a Director of the International Lymphoedema Framework (with Professor Christine Moffatt), a prior executive member of the International Society for Lymphology, currently Clinical Sciences editor for the “Journal of Lymphoedema” (UK), Australasian Editor or the Journal of Lymphatic research and Biology (USA) and a member of the editorial boards of “Phlebology” (USA) and “Lymphology” (USA).

Neil is a member International Advisory Board Union Internationale de Phlebologie, a member of its consensus groups on Lymphoedema and phlebo-lymphoedema, and a member of the steering committee for the Australian and American Lymphoedema Frameworks and the International Compression Club. Neil is the Patron of the Lymphoedema Support group of South Australia and of the National Lipoedema Support Society (LASS) in Australia.

Neil was an organising committee member for the 2016 Asia Pacific Lymphology conference held in Darwin Australia May 2016 and is on the planning committee for the 2017 Italian Lymphoedema Framework meeting.

Neil’s CD/DVD “The Vital Essence- Understanding Lymphoedema in health and disease” continues to help in informing of patients and practitioners on what can be done to better manage and treat lymph and other oedemas. A new version is being currently developed.

Neil’s major research interests revolve around the early detection of lymphoedemas (in conjunction with the Flinders Bio-medical Engineering Department), the importance of targeted and sequenced treatment and patient empowerment through the exploration of home based/patient based lymphoedema management options. Neil also is working with the above Department in the development of an instrument to allow the early objective detection of lipoedema.

Neil’s MD research student group are currently undertaking research in the areas of Laser and oedema management, the impact of handedness on lymphoedema diagnosis and its accuracy, an exploration of the use of hydrocephalus shunts in the treatment of lymphoedema, the impact of hypertrophic and keloid scars on lymphatic regeneration plus the benefits of the ENCORE program and the impact of climate change on the spread of Lymphatic Filariasis. PhD students who Neil is supervising are currently working in the area of ICG and its benefit in the early prediction of lymphatic disruption following high impact soft tissue injury (Malou van Vanten) and in the objective determination of the benefit of compression on early stage primary lymphoedemas (Jane Phillips).

Neil has collaborative interests with Natasha Harvey and Eric Haan and their group in the elucidation of the genetic basis of objectively identified lipoedema.

Professor Christine Moffatt

Professor Christine Moffatt CBE FRCN PhD MA RGN DN

Christine is Professor of Clinical Nursing Research at the University of Nottingham School of Nursing, Midwifery and Physiotherapy and holds other visiting chairs at the University of Glasgow and Cardiff University Medical School Wound Healing Institute. She is also nurse consultant at the Royal Derby Foundation NHS Trust Lymphoedema service in which she leads a research team as well as undertaking a clinical consultancy role.

Christine is currently joint Chair person and Director of the International Lymphoedema Framework (with Professor Neil Piller) She has been involved in wound healing research and practice for 25 years and Lymphoedema for 10 years. She has undertaken extensive research in this field using mixed research methods including running national and international clinical trials.

Her areas of research include compression therapy; service development and evaluation; psychosocial impact of disease; chronic wounds and lymphoedema. She has presented and published internationally.

She was awarded a CBE in the 2006 New Year’s Honours List and made a life fellow of the Royal College of Nursing that same year. She has received several life time achievement awards in recognition of her work, the most recent being presented by the World Union of Wound Healing Societies in June 2008. In December 2008 she received a Nursing Times Diamond 20 Award as one of the 20 most influential nurses in the last 60 years.

Anna Kennedy

Anna Kennedy

Anna spent 30 years in corporate senior management, working in the areas of training and communications for international companies like Thomas Cook and American Express. Her last business role was Vice-President with Indigo-Chapters, Canada’s largest retail book store, before she transitioned to the charitable sector in 2006.

Anna is now well entrenched within the lymphedema community on multiple levels. She is a Founding Director of the Canadian Lymphedema Framework and provides leadership in her role as both the CLF’s Executive Director and Editor of Pathways – Canada`s lymphedema magazine. She was appointed in 2012 to the Board of the International Lymphoedema Framework and since 2015 has been serving in her role on the ILF Executive Committee as Executive Secretary. Her contributions to the ILF include communications and conference organization. She was responsible for organizing the first International Lymphoedema Framework conference outside of England – (2011 Canada) and has been on the organizing committees of all the ILF subsequent conferences.

In 2012, Anna was awarded the Queen Elizabeth II Diamond Jubilee Medal in recognition of her leadership and contribution to the lives of Canadians. As a cancer survivor, living with lymphedema, Anna advocates healthy living and a positive attitude to help manage her life-long condition. She has presented on patient advocacy initiatives at numerous national and international conferences.

Margaret Sneddon

Margaret Sneddon MSc (Research), RN, RCNT, PGCHE, FHEA

Margaret’s clinical background is oncology and palliative care and she is an Honorary Lymphoedema Clinical Specialist in NHS Forth Valley in Scotland. She is well known for her contribution to lymphoedema education and research which she introduced and led in the University of Glasgow, for many years. This has been recognised by the University in the award of a Teaching Excellence Award in 2007, an Outstanding Contribution to Lymphoedema Education from the ILF in 2009 and a team award for Outstanding Contribution to Teaching by the Student’s Representative Council. Raising professional awareness of lymphoedema has been a driver in Margaret’s work over the years and has involved her as a specialist adviser in many education and government initiatives. She is currently Acting Vice Chair for the British Lymphology Society. Margaret is committed to promoting early recognition of lymphoedema, risk reduction and supporting self-management.

Margaret’s ILF portfolio includes co-chairing the International Education Committee, leading an initiative for a minimum standard of education on lymphoedema in undergraduate curricula for all health professions internationally (Lymphoedema Education Benchmark Standards), supporting conference planning and National Lymphoedema Frameworks. She led the organisation of the ILF conference in Glasgow in 2014.

Professor Isabelle Quéré

Professor Isabelle Quéré MD, PhD

Isabelle is a physician, Professor of Vascular Medicine at the University of Montpellier in France where she is Head of the Vascular and Lymphology Medicine Department.

Her main research areas include venous thromboembolism (VTE) disease, lymphatic and venous post-thrombotic syndrome (PTS), and rare vascular diseases. She has published internationally. She also teaches in a range of other subjects at the University.

Isabelle has experience working closely with International Societies and Charities, some of which she has been a Chair or a an active member of.

Since 2011 Isabelle has been the Head of the French Lymphoedema Framework, Partenariat Français du Lymphoedème –(PFL). She was the organiser and President of the last ILF Conference held in Montpellier in 2012 where she also ran a one week camp for nine children and young adults with lymphoedema, from four different countries.

Doctor Vaughan Keeley

Doctor Vaughan Keeley PhD, FRCP

Vaughan is a Consultant in Palliative Medicine in Derby, UK. He set up the lymphoedema service in Derby in 1990 and, more recently, services in Nottingham and Mansfield. The services treat patients with all types of chronic oedema, including that in children. He works with a multidisciplinary team of doctors, nurses, physiotherapists and occupational therapists. For the last two years he has worked full time in lymphoedema.

Vaughan chairs the BLS/LSN (Lymphoedema Support Network) Consensus group which has produced guidelines on the management of cellulitis in lymphoedema.

He is a member of the Editorial Board of Journal of Lymphoedema, Vaughan is Deputy Chair and a director of the International Lymphoedema Framework (ILF) and a medical advisor to the Lymphoedema Support Network (Patient Support Group).

His current research interests include: The measurement of “quality of life” in lymphoedema, the epidemiology of chronic oedema, the role of bioimpedance measurements in detecting and monitoring lymphoedema,prevention strategies for lymphoedema in breast cancer patients after axillary node clearance and the evaluation of intermittent pneumatic compression in the management of lymphoedema.

Susie Murray

Susie Murray M.A.

Susie has been associated with the ILF since its conception. Her background is as a nurse and midwife and she spent the last 25 years of her career as a Health Visitor working with families with small children to encourage the parents in their own and their family’s physical, mental and emotional health and well being.

When Susie ‘retired’ she was approached by the ILF to undertake interviews with children who had lymphoedema (and their parents) inorder for the ILF to develop an understanding of what it was like for the child who had lymphoedema and their family to live with this condition. The study sought to know how the family managed on a daily basis, their experiences of the services provided in the UK, and what they thought could happen to improve the life of their child. Even more importantly the project objectives were to find out from the child their experiences and ways of dealing with a condition that would be long-term.

Following this study and since getting ‘hooked’ on lymphoedema, Susie has spent the last few years working as a Clinical Trial Monitor in a range of lymphoedema studies for the ILF. She is presently co-ordinating the ILF international prevalence study – LIMPRINT.

Susie is committed to the ILF in the coming years to enable it to better carry out the task it has set for itself and ensure that the best management of lymphoedema and chronic oedema will develop worldwide.

Susan Nørregaard

Susan Nørregaard RN, DH

Susan is a specialist nurse in wound healing and lymphoedema working at Bispebjerg University Hospital in Copenhagen. She graduated from Sankt Lukas Stiftelsens Nursing School in Hellerup in 1988. Together with Professor Finn Gottrup and other collaborators, she established the Copenhagen Wound Healing Center in 1996 working as staff nurse in the outpatient clinic, with clinical responsibility for the development of clinical guidelines for the treatment of venous leg ulcers.

Susan has 25 years of experience in treating chronic oedema and in 2006, she established the first multidisciplinary lymphoedema clinic in Denmark, at the Copenhagen Wound Healing Center together with Dr. Tonny Karlsmark and Dr. Bo Jørgensen.

Together with Dr. Tonny Karlsmark she established the Danish Lymphoedema Framework in 2010 and she has been an ILF board member since 2011.

Susan has been a teacher at postgraduate education for healthcare professionals in Copenhagen and has developed teaching programmes for nurses treating patients with compression therapy. She has coordinated several international research projects and has been author and co-author on scientific articles.

Professor Peter J Franks

Professor Peter J Franks PhD

Peter is a medical scientist with interests in the epidemiology and health economics of wounds and lymphoedema. He has been researching wound care for 25 years with his main collaborator Professor Christine Moffatt.

Together, they established the Centre for Research & Implementation of Clinical Practice (CRICP), a charity established in 1994, to develop and evaluate models of care to overcome the specific needs of health organisations and patients. The Centre has established links with academic and clinical groups in Portugal, Czech Republic, Slovenia, Poland, USA, Japan and Canada. He was president of the European Wound Management Association 2005-2007, having served on the board of directors of EWMA for ten years.

In April 2001 Peter received a full personal chair in Health Sciences at Thames Valley University (now the University of West London), UK. His current position is as the director of CRICP, with academic professorial appointments at Glasgow University Medical School and London South Bank University.

Peter has been a co-author on the number of research projects related to epidemiology and service development in both leg ulceration and lymphoedema. He is a partner in an Erasmus project (PoLyEurope – Postgraduate Lymphology Training in Europe) funded by the EU to develop a pan European graduate course in lymphoedema to medical practitioners.

Honorary Board Trustee - Professor Hiromi Sanada

Professor Hiromi Sanada PhD, RN, WOCN

Hiromi is a professor at the Department of Gerontological Nursing/Wound Care Management, Division of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, Japan.

Hiromi is also a president of three academic societies of wound care, Japanese Society of Pressure Ulcers, and Japanese Society of Wound, Ostomy, and Continence Management, and The Society for Nursing Science and Engineering. Furthermore, she is a vice-president of Japanese Nursing Association from 2011, which is the largest professional organization for nurses consisting of approximately 650,000 nurses.

She is an editor of International Wound Journal and an editorial advisor of Journal of Wound Care. She graduated from St. Luke’s College of Nursing in 1979, and received the Enterostomal therapist certification from St. Luke’s International Hospital, E. T. School in 1987. She received her PhD from Kanazawa University in 1997. After working as a professor at Kanazawa University from 1998, she moved to The University of Tokyo as a professor of Gerontological Nursing and Wound Care Management Department.

Hiromi has published and edited many scientific articles and text books which are now being used as a gateway for researchers and clinicians in the wound care management.

In respect of her many contributions to the work of the ILF, in 2015 Hiromi Sanada was granted the prestigious position as Honorary Trustee of the International Lymphoedema Framework.