National
Frameworks

The National Frameworks are non-profit organisations that work nationally to uphold the philosophy of the ILF. They are committed to putting patients at the heart of their activities, to collaborating in multidisciplinary partnerships between all stakeholders in their countries, and to supporting the mission of the ILF.


See the list below for contacts.

 

Belgium

The Belgian Lymphoedema Framework Belgium
The Belgian Lymphoedema Framework (BeLymph) is an organisation that works for bringing patients with lymphoedema together with clinicans, researchers and technicians.
The purpose of BeLymph is to educate patients with lymphoedema and their health care providers about the optimal treatment of lymphoedema.
Safety, health and quality of life of the patients are central to the BeLymph. They use scientific, clinical and technical knowledge to improve the health, safety and quality of life of patients with lymphoedema.
BeLymph has been a national framework since 2016.
For more information on the Belgian Lymphoedema Framework, visit their website
 

Bulgaria

The Bulgarian Lymphedema Framework Bulgaria
The Bulgarian Lymphedema Framework is managed by the Bulgarian non-profit patient organization — Bulgarian Lymphedema Association. The goal of the Bulgarian Lymphedema Framework is to work to improve management of lymphedema and related diseases in Bulgaria, while also contributing to international progress in the development of care for this disease.

Our vision — life with lymphedema is possible!
Our mission — raising awareness of the public and all groups involved in the healthcare system about the nature of the disease, its effect on patients, and the economic aspects of the problem. And, to encourage and support efforts to ensure high-quality treatment for all patients with lymphedema in Bulgaria.

For more information on the Bulgarian Lymphedema Framework, visit their website

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Canada

The Canadian Lymphedema Framework Canada
The Canadian Lymphedema Framework is an academic and patient stakeholder collaboration that is part of an international initiative that promotes education, research, best practices, and lymphedema clinical development, worldwide. Our vision is that comprehensive treatment for lymphedema and related disorders will be accessible to all persons across Canada. Our mission is to improve the management of lymphedema and related disorders in Canada. The CLF has been a national framework since 2009. Our framework is modeled on and aligned with the ILF and collaborates with the ILF, national frameworks in other parts of the world, and the provincial lymphedema associations across Canada to advocate for lymphedema research and educate Canadian patients and health care professionals. 
For more information on the Canadian Lymphoedema Framework, visit their website

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Croatia

The National Lymphoedema Framework Croatia
The National Lymphoedema Framework Croatia – Lymph & I as national non- profit organisation serves as platform for all individuals, health professionals, industry and government dealing with lymphedema/lipoedema to conjoin in order to provide the best of care.
The vision is to ensure availability of high quality lymphoedema/lipoedema management throughout Croatia.
Their mission is to raise awareness and improve knowledge of lymphoedema/lipoedema management through providing research, training and practice.
The NLFC – Lymph & I has been a national lymphoedema framework since 2022.
For more information on the National Lymphoedema Framework Croatia – Lymph & I, visit Facebook and Instagram
 

Denmark

The Danish Lymphoedema Framework Denmark
The Danish Network for Lymphoedema (DNL)/Danish Lymphoedema Framework (DLF) is recognized as a professional, interdisciplinary network of doctors, physiotherapists, nurses and other therapists as well as patients.
DNL / DLF works across personal and professional interests in order to raise awareness and spread knowledge about lymphoedema.
Free treatment of lymphoedema in Denmark is a core mission of the DNL / DLF.
DNL / DLF strives to be an integrated, active partner in the ILF and bases its work on ILF’s consensus and focus documents.
For more information on the Danish Lymphoedema Framework, visit their website

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France

Le Partenariat Français du Lymphoedème France
The National Frameworks are non-profit organisations that are working nationally to uphold the philosophy of the ILF. They are committed to have patients at the heart of any activities, collaborate in multidisciplinary partnerships between all stakeholders in their country, and support the missions of the ILF.
Examples of the work that some of the National Country Frameworks have contributed are:
  • participation in LIMPRINT and other multi-country research studies
  • creation of patient education tools and national magazine
  • conducting Lymphedema Landscape studies
  • research literature review and section writing for ILF Position and Focus documents
  • implementation of minimum data set
  • advocacy for country reimbursement of lymphoedema care
For more information on the Partenariat Français du Lymphoedème, visit their website

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Ireland

National Lymphoedema Framework Ireland Ireland
The mission statement of the NLFI is dedicated to advocating for the improvement of lymphoedema care for patients in Ireland, in line with International Best Practice Guidelines as advocated by the ILF.
The NLFI Steering Group aims are to engage with the appropriate members/stakeholders, government, health care organisations and patient advocacy groups in order to support the development of a strategy for lymphoedema services in the Irish Republic and to promote and support the establishment of a clinical pathway for management of lymphoedema in the best interest of patient care.
NLFI has been a national framework since 2015.
For more information on the National Lymphoedema Framework Ireland, visit their website

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Italy

The Italian Lymphoedema Framework Italy
The National Frameworks are non-profit organisations that are working nationally to uphold the philosophy of the ILF. They are committed to have patients at the heart of any activities, collaborate in multidisciplinary partnerships between all stakeholders in their country, and support the missions of the ILF.
Examples of the work that some of the National Country Frameworks have contributed are:
  • participation in LIMPRINT and other multi-country research studies
  • creation of patient education tools and national magazine
  • conducting Lymphedema Landscape studies
  • research literature review and section writing for ILF Position and Focus documents
  • implementation of minimum data set
  • advocacy for country reimbursement of lymphoedema care
For more information on the Italian Lymphoedema Framework, visit their website

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Japan

ILF Japan Japan
The National Frameworks are non-profit organisations that are working nationally to uphold the philosophy of the ILF. They are committed to have patients at the heart of any activities, collaborate in multidisciplinary partnerships between all stakeholders in their country, and support the missions of the ILF.
Examples of the work that some of the National Country Frameworks have contributed are:
  • participation in LIMPRINT and other multi-country research studies
  • creation of patient education tools and national magazine
  • conducting Lymphedema Landscape studies
  • research literature review and section writing for ILF Position and Focus documents
  • implementation of minimum data set
  • advocacy for country reimbursement of lymphoedema care
More information about ILFJ can be found here: ILF Japan website and Facebook.
 

The Netherlands

The Dutch Lymphoedema Framework The Netherlands
Dutch Lymphoedema Framework (Nederlands Netwerk voor Lymfoedeem en Lipoedeem (NLNet)) is a nationwide organisation for all patients with lymphoedema, both primary and secondary, children (and their parents) with lymphoedema and patients with lipodema.
The NLNet wants to be an independent platform for providing (scientific) knowledge, national and international guidelines and experience to those who suffer from lymphatic disorders, especially lymphoedema and lipodema. It targets both patients, patient organisations and care providers.
NLNet has been a national framework since 2016.
For more information on the Dutch Lymphoedema Framework, NLNet, visit their website

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Qatar

The Qatar Lymphedema Framework (Qlf) Qatar
The Qatar Lymphedema Framework (QLF) is a comprehensive national initiative dedicated to providing support for individuals dealing with lymphedema, lipoedema, and vascular insufficiency, both cancer and non-cancer related, within the state of Qatar. The primary mission of the QLF is to raise awareness about these conditions and enhance access to essential consumables for those in need.

This project brings together various stakeholders, fostering collaboration among healthcare providers, non-profit charity organizations, industry partners, and patient advocacy groups. The collective aim is to create a collaborative network that facilitates optimal support for patients dealing with these challenging health conditions. Through these partnerships, the QLF seeks to improve the overall well-being of individuals affected by these diseases, ensuring they receive the necessary care and resources.
 

Saudi Arabia

The Saudi Arabia Lymphoedema Framework Saudi Arabia
SALF is a non-profit organisation that works nationally to uphold the philosophy of the ILF and collaborates with it and with other national frameworks in other parts of the world. The mission of SALF is to improve the management, training and research in lymphology, lymphoedema and related disorders in the Kingdom of Saudi Arabia.
Patients and health care professionals are the center of the work of SALF. SALF aims to promote and facilitate the best possible standards of care, connecting HCPs in one platform, influencing the research, and encouraging training and education.
SALF has been a national framework since 2021.
For more information on the Saudi Arabia Lymphoedema Framework, SALF, visit their Twitter channel

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Switzerland

The Swiss Lymphoedema Framework Switzerland
The Swiss Lymphoedema Framework (SLF) is an umbrella organisation for all professional groups that are involved in the diagnosis and treatment of lymphoedema and lipoedema in Switzerland. This includes also organisations that represent the interests of patients.
The members include professional associations, specialist associations, educational institutions, patient organisations and industry partners are represented in the SLF. In addition, the SLF has benefactors that support them. The SLF has been a national framework since 2018.
For more information on the Swiss Lymphoedema Framework, visit their website

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Turkey

The Turkish Lymphoedema Framework Turkey
The Turkish Lymphedema Association aims to increase the awareness of lymphoedema working for the benefit of physicians, physiotherapists, nurses, technicians and patients from different branches.
The most important goal for the association is to create standardization and differentiation in the scientific arena and patient services by providing strength to health professions and patients on lymphoedema, providing material and spiritual solidarity, awareness and training environment, improving diagnosis and treatment possibilities on lymphoedema.
For more information on the Turkish Lymphedema Association, visit their website

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USA

The American Lymphedema Framework project USA
Central to the American Lymphedema Framework Project (ALFP) is improvement in the management of lymphoedema and related disorders in the United States while contributing to global international advancement.
This mission is being achieved by defining best practices of lymphoedema management and developing a minimum data set to improve lymphoedema outcomes. The ALFP works to establish a leadership role in lymphoedema risk reduction, treatment, education, health policy, and research. These outcomes will be achieved through a partnership among all lymphoedema stakeholders, including patients, healthcare professionals, researchers, industry representatives, and third-party payers.
The ALFP has been a national lymphoedema framework since 2009.
For more information on the American Lymphedema Framework Project, visit their website

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Wales

The Lymphoedema Network Wales Wales
Lymphoedema Network Wales (LNW) was developed in 2011, after receiving a £1 million recurring investment from the Welsh Government to implement its Lymphoedema Strategy. The Strategy aims to enable all lymphoedema patients access to the appropriate services at the right place, right time and with the right person regardless of whether their lymphoedema is related to cancer or not.
The Lymphoedema Network Wales Framework has been a national lymphoedema framework since 2019.
For more information on the Lymphoedema Network Wales framework, visit their website

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